Tuesday, April 24, 2007

"Your child has autism. Good luck with that."


"Your child has autism. Good luck with that."

In other words, "Here's your hat. What's your hurry?"

That was our experience and it is the experience most parents have when the evaluations have been finished and the psychologist hands down the diagnosis of autism.

This article is a good read. It describes what many parents go through just after the diagnosis and then year after year as they struggle to get help for their children while struggling to keep their families together.

Their children's autism consumes them. It commands all of their attention to a point where when a stranger asks them to describe life as they now know it, they cry.

"People," Laurie says, "have no idea."

Like all parents of children with autism, their children's diagnoses first devastated them, then overwhelmed them.

In the midst of their grief, they discovered that they were pretty much on their own.

There would be no government outreach worker to advise them; there would be no one guiding them through the dizzying array of therapies out there for their child. There would be no one helping them hire therapists and consultants -- if they could find therapists and consultants who didn't have waiting lists.

"For me," Jannise says, "when I first got the diagnosis, it was a feeling of completely being lost, of not knowing what to do, of not knowing how to do it.

"And there was a lack of support from the system, too, because it was like, 'Okay, you've got a diagnosis, now go away."

Click HERE to read the full article.

But now I urge you to keep up your courage, because not one of you will be lost; only the ship will be destroyed.
Acts 27:22

2 Comments:

Blogger MOTHER OF MANY said...

I remember thinking ,'is this it?' when we had the diagnosis for my daughter and waited for someone to tell me what to do but nothing happened.

5:00:00 PM  
Anonymous supermom_in_ny said...

My son was a normallittle boy, but he got became really ill after receiving 4 immunizations in one day. He was never the same. He's a happy little boy and I'm sure he's an extrovert because of his 6 older siblings.

I still feel autism robbed me of my son's full potential, but it will not stop us from helping him achieve HIS very best.

Love your blog. My 7yo has PDD-Nos. He's the youngest of 7.

Be blessed.

11:21:00 AM  

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